I met this crazy rheumatologist, let’s call him Dr. Dickhead. I met Dr. Dickhead several months ago by a referral from my doctor over some scary test results. This is his story.
I moved to the Atlanta metro area last year, and had yet to go to an Emory facility. Then a couple of months ago I was referred by my PCP to Emory at Decatur Rheumatogy, thatās when I met Dr, Dickhead. I was referred based on a very high ANA test result along with debilitating joint pain, among other symptoms.
The first hurdle was simply getting an appointment with Dr. Dickhead. I called for a week to try to get an appointment, and kept being told (when someone answered the phone) that someone else would call me back. On the third call to a woman at the front desk, they told me that someone named āKimā was who I needed to talk to. They confirmed that they had received my pre-appointment paperwork and said she would call me that day. I never heard from her. I chalked this office up to chaos and decided to call the Emory hotline to help me find a doctor. With the help of that hotline I secured another appointment with a different doctor, but they could not get me in until November.
My doctor believed I needed seen before that, so she took matters into her own hands and called Dr Dickheadās office. I received a call the next day, wherein I was told that they called and left a voicemail (they had not) and basically told that I just have just missed it (I had not). Then āKimā made the appointment with me.
The above situation was a small inconvenience compared to how I was actually treated by the doctor himself when I got to my first appointment.
As soon as Dr. Dickhead walked into the room with me, he began to berate my doctor, a women it would appear he doesnāt know, and complain that it was like, āpulling teethā to get my pre-appointment paperwork. I had already confirmed two weeks before that they had received it, not to mention the fact that the day my doctorās office sent it over I called the office several times to talk to someone to confirm they received it. They had.
After he finished his tirade on my doctorās office and how horrible āoffices like thatā are, he asked me to tell him about my symptoms. At this point I was shocked. I wasnāt sure what he meant by a doctorās office ālike that,ā but was increasingly feeling like as a white male, he didnāt appreciate or understand my very female, very female originally from the Middle East, doctor. Ahem.
But I was stuck and thought he was the only one who could help me, so I proceeded to tell him my symptoms, but he immediately stopped me. He did this several times throughout the appointment, both stopping me to tell me he ādidnāt careā about one symptom or another, or that he was āall doneā listening to me.
Iām not sure if heās had other women complain about him being rude, with a horrible bedside manner and slight bend toward masochism, sexism in the least, but I wouldnāt be surprised if he has. He had me so upset and flustered I started to forget all the things I needed to talk to him about and I transposed the dates of my first symptoms. He berated me for not remembering the exact dates, which added to the confusion, not to mention that was one of my symptoms, a brain fog that hasnāt lifted like the joint pain, no matter what I try.
But he didnāt seem go particularly want to hear about my symptoms, rather he wanted to tell me how I was feeling and should have felt. He kept mentioning that āas a manā he can only do one thing at a time, so when I would remember something that he wanted to know he would shush me if he was writing. Like, actually āshushā me. Then make that āIām a manā joke like I was supposed to forgive him because his gender doesnāt know any better. I was starting to think I was on one of those shows where a person with a camera pops out and tells me Iāve been punked.
He all but told me he didnāt believe any of my symptoms, although he several times repeated, āI believe you, I believe you.ā Iām not sure what that was about, but I didnāt care whether or not he believed me–I had already been diagnosed from the symptoms I was discussing with Raynaudās Disease, by my doctor. Of course Iām sure he didnāt believe her capable of diagnosing me…
He eventually told me that there were over 100 auto-immune disease that he had to ācross off the listā and test for, but that we would find out what was wrong, though he told me more than once that my very high ANA test was probably a āfalse positive.ā When I asked him why I could be in so much pain then, he said it was probably an overreaction of my immune system. Isnāt that why I had a high ANA then? I asked, confused at this point and he said, ādoesnāt matter.ā Kinda felt like it mattered to me though, seeing as Iāve been rendered almost completely immobile several times over the past three months.
Eventually we got to the current symptoms (I had to think back over the last several years) and I started to tell him about the joint pain, the swollen blood vessels that have appeared on my legs, the weird skin problems I have been having and then I said a word that apparently was like a knife to him, āsteroids.ā I explained that on my original visit to Urgent Care, and then to my subsequent visit to my doctor, both medical professionals had prescribed steroids to help ease the pain, and he went absolutely bananas. Like, he fucking lost it, yāall.
He stopped taking notes, he told me that anything I said āafter that pointā was not important and was just symptoms from the steroids. He ranted about how horrible they were and that that explained my test. When I informed him that I hadnāt taken them before that test, he flipped out again. Threw his pen down and made a big show of it, arms up, like a child. Thatās when I assumed he was a Trump supporter.
I assured him that I had these symptoms before I took the steroids and he said simply, āNo you didnāt.ā The problem was, I did. I mean, I know Iām just a woman, Dr. Dickhead, but Iām not completely ignorant.
He then did a physical exam, wherein he told me I had no symptoms of Raynaudās Disease (something to do with swollen arteries in my toes and fingers that he looked at with a small magnifying glass of some kind) while he told me that āBig Box Clinicsā were horrible and asked why I even went to one. I tried to explain that I had experienced suddenly swollen joints with a fever and they were afraid I might have Covid-19, so my doctor wanted me to visit an Urgent Care first to be tested. But of course he didnāt hear any of that, as he was still saying that āsteroids are badā and any doctor who prescribes them are horrible.
At this point, as you might imagine, I shut down. He never even let me tell him other symptoms. He asked me to tell him more, but I was nervous about being berated more, and I didnāt know what he wanted to know as the main reason I was there, aside from the ANA test results, was for joint pain, which he told me I didnāt really have. He then told me he would run bloodwork and that bloodwork would āshow him the truth,ā which I took to mean that I was a liar.
The last thing I asked him was whether or not I should take the other steroids that had been prescribed to me. I had another pack to help ease the pain I was having and he laughed and said that it would skew tests (of which I would have no more) and that I should never take steroids āunless you have something that requires them.ā I asked him if I should stay with the physical therapist and he said, āDo what you want.ā I said it didnāt seem to be helping, so I would stop. The last thing I asked him before I was ushered to the lab for bloodwork, was how I was supposed to help ease the joint pain and Dr. Dickhead told me āto suffer.ā And so I did.
Thatās brings me to my follow-up last week, three weeks after my initial appointment which seemed long, considering the lab said he would have my results in 3-5 days. I was there for an hour before I saw him, meanwhile I overheard him talking to a male patient in the next room (where he seemed very nice and cordial). As an aside, that office has very thin walls. At first I thought it was because Dr. Dickhead has a shrill, loud voice, but then I heard the women at the front talking about all sorts of things (one woman, āKimā was mad that they had let her teenage daughter participate in a mock election at school. āWhy would I want my daughter to be involved in that?ā She wondered to someone. The other person replied, āIsnāt she 14? Wonāt she be voting in the next general election?ā To which āKimā replied, āI told her she didnāt have to vote, thatās her right.ā So yeah, thatās the kind of people working at Dr. Dickheadās office.)
When he finally got to my room, Dr. Dickhead told me that I did in fact have Raynaudās Disease, this as I said, I already knew. He also told me that I was an āinterestingā patient and that he could diagnose me with more, or run more tests (because I had some āinterestingā finding) but that he wasnāt going to do that.
He told me I could have CREST Syndrome, or a couple of others, but that I probably didnāt. He didnāt schedule any more tests, he didnāt do as he promised (crossing more tests off the list to find out what is wrong with me) and he didnāt answer my questions. He basically said, āIām telling your doctor you are fine.ā Then wrote my paperwork and told me to take a baby aspirin every day.
When he asked if I had questions I had a few, like why was I still experiencing joint pain? He said, āI donāt know, Iām done.ā Then when I asked if these auto-immune diseases, the ones he said I may or may not have, could impact other symptoms I am experiencing, including the aforementioned swollen blood vessels, the reddening skin, the ulcers, the gastrointestinal issues, etc. He said, āIām not taking responsibility for any of that on.ā Then he said goodbye.
My whole experience mad me so upset I wanted to scream. Instead I wrote a strongly-worded email to Emory (I wonāt hold this one experience against Emory as a whole) and asked what I do now.
I have an appointment with my doctor in a few weeks, and I plan to tell her all the awful things he said about her and her office, but I still have the appointment with the other Rheumatogist in November, which I would like to see because I honestly have no idea what to do next. Do I need more tests to cross out more diseases? Do I need to watch for any other symptoms? Raynaudās can stand alone, or be the first symptom in a string of other, bad diseases like CREST which can have negative impacts on your cardiovascular system.
Iām honestly still shocked and in awe of what I went through with a āmedical professionalā and one that represents a place like Emory. I had heard such great things about Emory, and I was disappointed, but most of all, I was shamed, made to feel like a liar, made to believe what I was feeling was not real, made to think I was sort of crazy. Not to mention the fact that I was repeatedly talked down to, from the receptionist to the doctor. My best experience throughout that whole ordeal with with the lab next door (LabCorp). The calmed me down that day, when I felt like crying.Ā
Iām sharing today because I learned a valuable lesson: I wonāt be letting anyone treat me that way again, there are too many other nice people in this world. And please donāt let anyone treat you that way either.
Letās stand up for ourselves, shall we?
M.
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