Hot Mess Express

For those of you following along with my medical drama, I figured I’d let you know that I’m headed into see a new Rheumatologist at Emory today. This is a woman, thank God, and from what I can gather from her health grades story she’s an immigrant. Whew. I already feel better. I’m so over old, white men doctors telling me to just “suffer” so they can run more tests.

When I saw my doctor last week she was appalled by my treatment at Dr. Dickhead’s office and apologized on his behalf, which I asked her not to. He’s a grown-ass man. Meanwhile I’m still waiting on an apology from his office or at least a letter of resolution from Emory. If you have no idea what I’m talking abbot you can get up to speed here.

My doctor wasn’t happy with the test results from Dr. Dickhead, go figure, so when I asked what I should do she said to go to another Rheumatologist and a dermatologist, of which she wrote me a referral. I asked her if this was all stress related and she said that stress can do a number on our bodies, but that no, stress would not shoot her these wacko ANA and white blood cell results that she keeps getting from me. She thinks the underlying condition is certainly exasperated by stress though, which might explain why I’ve had more energy this week than I have in the last 12 weeks.

So there you have it. More doctors. No solid explanations yet. The only diagnosis so far is Raynaud’s which is still a real pain in the ass and the baby asprin isn’t working and it’s starting to get cold here and I’m antsy. Ugh.

Wish me luck.

And remember, there will be times you have to advocate not just for others, but for yourself too. Treat yourself fairly as well.

M.

Raynaud’s Disease

If you’ll remember my Dr. Dickhead story from the other day, you’ll remember one of the diseases I was diagnosed with was Raynaud’s Disease. It’s sounds scary, but it’s really not, especially if I have the stand alone version of it. The stand alone version means that your small arteries contract sporadically and restrict blood flow to certain parts of your body. See, it sounds scary. But for now it’s only happening in my toes and fingers. But I can happen in other, more important parts, like your heart and your deep veins. Which is why answers are still needed.

So what does it mean when the vessels spasm? I get very, very cold. My toes will go numb, I’ll lost feeling in my fingers. In fact, I have slippers that you can microwave for two minutes then stick on your feet to help. Well, I had them. Winnie decided to chew one up this week, so I’m patiently waiting on new ones from Amazon.

The problem is, if I don’t warm my feet quickly, they will turn blue, then purple, then white. Then it’s bad. It can take an hour to regain feeling in my toes when it strikes. Keeping the symptoms at bay are most important. The problem is, it isn’t just a sudden gust of cold air that can make it happen. Stress is a factor.

Yeah, you guys know how great I am at handling my stress! Ha! So over the last year this has been happening to me several times a week, some weeks it happens every, single day. It’s more annoying than anything else, but now that my family is used to it, they act quickly to help out. Warming my slippers, or grabbing me gloves. Sometimes I read with gloves on, while I am sipping hot tea and it helps my hands. Sometimes all I can do is sit on my feet until I regain feeling.

So there you have it, Raynaud’s disease. It’s a thing. If this happens to you, you need to see a doctor quickly. Don’t wait two years like I did, assuming it was normal and you were just getting old. Bleh.

M.